Hi Sherry — We’re so sorry to hear how your daughter is suffering. Unfortunately we can’t speculate on diagnoses online without an in-person exam. We recommend visiting a pain specialist next. It looks like you’ve tried a lot of different resources, which was smart of you to pursue. A pain specialist will be able to take that information, run a more specialized series of tests, and help her find out what’s causing her pain. There are a lot of causes of chronic head and face pain, and a great doctor won’t stop until they’ve figured out the right diagnosis and treatment plan for her.
Various locations were proposed for the primary lesion during the nineteenth century, including nerve roots , ganglia , trunks and branches, as well as the brain and spinal cord. In 1828, JC Warren  and TJ Graham  placed the cause in the trunk or branch of the nerve innervating the perceived site of the pain, though Graham also attributed neuralgia to "morbid sensibility of the nervous system" due to "great disorder of the general health". Teale in 1830  and many after him argued that it may be located in the spinal cord or nerve root. Later in the century some proposed it may be an affliction of organs such as the uterus or liver, while others classed certain headaches as neuralgias, and proposed that emotional distress may promote the condition.